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Self-reporting platform could enhance high quality of life in lengthy COVID, autoimmune illnesses

January 19, 2023

2 min learn

Supply/Disclosures

Disclosures:
Bundy and Dyhrberg are staff of Mymee Inc.


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A self-evidence knowledge platform could assist sufferers with autoimmune illnesses and lengthy COVID keep away from sure way of life and environmental triggers, in keeping with a press launch.

“The actual-world proof from the examine reinforces why even following commonplace pointers that present advantages to the typical particular person will be harmful for some sufferers: No two people within the examine reported the identical mixture of signs and sensitivities,” Mette Dyhrberg, the CEO and founding father of Mymee Inc., stated in a press launch. “The extra delicate a affected person is to their meals and surroundings, the better their signs, and the extra a precision method primarily based on their very own proof turns into obligatory.”

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A self-evidence knowledge platform could assist sufferers with autoimmune illnesses and lengthy COVID keep away from sure way of life and environmental triggers, in keeping with a press launch. Supply: Adobe Inventory

Researchers used the self-evidence knowledge platform from Mymee, a digital care program for folks with autoimmune illnesses, to conduct a retrospective, real-world examine during which enrolled sufferers had been paired with a devoted well being and diet coach. The coaches beforehand obtained coaching with the platform to higher perceive the dietary and environmental wants of sufferers with lengthy COVID and autoimmune and rheumatic illnesses, the discharge stated.

In the meantime, nearly all of the 202 sufferers enrolled within the examine had been identified with systemic lupus erythematous, rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, blended connective tissue illness or lengthy COVID.

Sufferers used the Mymee platform to maintain monitor of interactions between signs and doable environmental sensitivities and had been evaluated to measure the impression of this system on their health-related high quality of life, in addition to for signs of 59 completely different illness manifestations. Common time in this system was 17 weeks, with a mean of 756 observations recorded per affected person.

In keeping with the discharge, among the many sufferers with lengthy COVID, 93% self-reported ache and or aches in joints, 73% reported stiffness or limitation of motion, and greater than 97% reported fatigue at baseline. In the meantime, sufferers who used the platform reported “vital” enhancements in all measured domains, together with fatigue, anxiousness, ache interference, ache depth, social roles, sleep disturbance, cognitive perform, bodily perform, and talent to handle signs. As well as, sufferers found sensitivities together with sunflower seed butter, vanilla extract, cinnamon, kale, ginger, probiotics and dietary supplements.

“Crucial qualitative findings had been the numerous enhancements in these sufferers who had tried one-size-fits-all weight-reduction plan and way of life interventions however discovered no reduction or received worse,” Nicole Bundy, M.D. a rheumatologist and medical director at Mymee, stated within the launch. “The retrospective included sufferers who had tried the Mediterranean weight-reduction plan, the Autoimmune Protocol Food regimen or an elimination weight-reduction plan with out profit. The timing could not be higher, with American Faculty of Rheumatology’s newest pointers launched this week encouraging rheumatologists to think about weight-reduction plan and different integrative interventions in therapy.”

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