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What it is wish to be identified with arthritis at 13

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Natasha Trehan nonetheless shudders when she thinks again to her Grade 8 12 months — when she first began experiencing painful signs and did not know what was occurring.

“I could not do issues I liked, like decide up a tennis racket or play the piano,” recollects the now 19-year-old, who immediately felt a throbbing ache in her wrists and arms.

For months, she thought she had sprained her palms. When the ache traveled all the way down to her ft and ankles, she knew one thing was critically fallacious.

It wasn’t till a classmate lastly urged her to see a physician that Trehan began on the trail towards her eventual analysis.

Trehan, like 6,000 Canadians underneath age 15, had Juvenile Idiopathic Arthritis, or JIA — an incurable inflammatory illness that causes ache, swelling and stiffness in joints.

For Trehan, who lives with Juvenile Idiopathic Arthritis, help comes from many locations. ‘From my greatest mates, health-care professionals, analysis teams and now this new neighborhood I am forming via Take a Ache Examine.’ (Nicole Bedford)

Identified at 13

Brianne Chou, the classmate who urged Trehan to hunt a physician for her ache, mentioned her buddy might now not maintain a pencil. Chou needed to take notes for her at school.

“I feel it is so vital that we get away from the concept solely previous folks get arthritis, as a result of that’s the most typical false impression,” mentioned Chou.

By the point Trehan obtained the arthritis analysis, an MRI revealed she already had in depth injury to her joints and he or she started a protracted street of medicines and remedy to handle her ache.

“Being in my early teen years and navigating an already complicated time in my life, I felt so alone and didn’t know anybody who might presumably perceive what I used to be going via,” mentioned Trehan.

“I did not imagine that there have been different folks dwelling with my illness.”

Trehan, proper, says mates like Brianne Chou, left, have helped help her via her sickness, most just lately touring to Ottawa for a remaining street journey earlier than they every go their separate methods to school. (Submitted by Rahul Vivekanandan)

Managing homework and power sickness

Her analysis meant Trehan’s highschool expertise was not what she had anticipated. As an alternative of tennis observe, her extracurricular hours have been full of physician visits and conferences with the varsity to speak about lodging.

Trehan mentioned she usually felt judged and dismissed by academics for not trying sick sufficient to require additional time and help, as a substitute relying closely on mates who tried however typically struggled to grasp her sickness.

“There was a little bit of a studying curve for all of us as a result of there’s so little consciousness of Juvenile Idiopathic Arthritis,” mentioned Rahul Vivekanandan, who would sit with Trehan for hours whereas she obtained therapeutic infusions on the hospital to alleviate her ache.

Chou, left, Trehan, center, and Vivekanandan, proper, all contribute to Trehan’s platform, an initiative that works to advocate for folks with power diseases. (Ash Abraham/CBC)

The way to Take a Ache Examine

In March 2021, Trehan was ending her final 12 months of highschool throughout the COVID-19 pandemic when she determined to launch a podcast and on-line platform for youth with rheumatic ailments and power diseases.

“I wished to verify different younger folks would by no means have the expertise I had, and really feel alone.”

She recorded the primary episode from her bed room.

She hoped it could ring a bell with others who know what it is wish to navigate life as a youngster with an invisible, power illness, and notably the problem of seeming high-quality sooner or later then fighting easy issues like lifting a suitcase the subsequent.

“When you’ve got arthritis, typically you might have to cancel plans or take a rain test resulting from a flare,” defined Trehan, who named her platform Take a Ache Examine.

In a matter of months Trehan had interviewed youth with arthritis from world wide and commenced making a community of younger folks with rheumatoid ailments — equivalent to Naomi Abrahams, a second-year PhD scholar on the College of Ottawa who mentioned a lot of the content material resonated along with her personal expertise.

“I used to be type of thrust into grownup care,” mentioned Abrahams, who was identified at 18 and lives with power ache all through her physique.

“I can have days with minimal to no ache, and on these days I can virtually overlook my arthritis. However when ache is current it could dictate how my day performs out.”

Abrahams mentioned she was amazed to seek out so many different younger adults like her via Trehan’s platform.

Trehan met Naomi Abrahams for the primary time in the summertime of 2022. The pair have been each identified with arthritis as teenagers and contribute to the Alternative Analysis Labs in Ottawa, which focuses on managing power ailments. (Nicole Bedford/Ash Abraham/CBC)

New college, new neighborhood

This previous fall, Trehan moved to Ottawa to pursue biomedical sciences on the College of Ottawa. She plans to proceed her podcast and construct a community of help — whether or not it is via health-care professionals or the friendships that give her braveness to maintain going.

“My greatest mates have stood by me each step of the best way. On days that I used to be in ache or simply wished to surrender, they inspired me to imagine in myself,” mentioned Trehan.

“The help that I acquired from them, and the power sickness neighborhood, gave me the arrogance to self-advocate and turn into a voice for others.”

Nicole Bedford is a filmmaker and media artist primarily based in Ottawa. She labored with CBC Ottawa Creator Community producers to convey Natasha Trehan’s story to life. (Nicole Bedford)

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